Community engagement – Page 2

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This job aid is for anyone who regularly talks to, meets with and supports communities affected by HIV. It gives you the information you need to talk to parents and caregivers to encourage infant HIV testing.

A poster to encourage parents and caregivers to take their baby for an HIV test.

A strategic framework for networks of people living with HIV and other civil society organisations to help you develop an action plan to work in support of infant HIV testing.

In 2015, all our problems were solved. Extreme poverty was eradicated, the environment saved, and some say we got gender equality — all of this in a context where universal access to HIV treatment was achieved in 2010!

People living with HIV always knew the Millennium Targets , those sacred vows by the member states of the United Nations, would not change the order of things. Yet instead of making the necessary paradigm shifts we engaged in a long process to formulate the Sustainable Development Goals. In the HIV response this meant adding more numbers — first we had 3 by 5, then we were Getting to Zero, and now it is 90-90-90.

At GNP+ we have not added new numbers. We still work to improve the quality of life of people living with HIV. We continue to advocate for universal access to quality HIV care and treatment for those who want and need it. Where numbers are concerned we believe, “universal” means “everyone”, not “everyone except the unpopular or unwanted”.

The magazine you are reading now — our annual report for 2015 — reflects the key initiatives we embarked, driven by our mission. This is our story. It relates how we support the engagement of young people and key populations living with HIV in decision making processes and reaffirmed their basic rights as human beings. It recounts how we fight to ensure the Global Fund work for all of us, and how we support the capacity of people living with HIV to do policy and programme analysis, do research on their own situation, and influence HIV responses.

Numbers may sometimes be useful, but in the end our work is about human beings. Ending the AIDS epidemic and ensuring the wellbeing of all affected must consist a broader, more holistic view that embraces differences. We want to show you how our movement — the movement of people living with living — has evolved to embrace diversity. We hope you enjoy our magazine and will join us to make sure the human rights of people living with HIV are protected in every corner of the world.

The United Nations will gather for the High Level Meeting on HIV on 8-10 June 2016. Many say this may be the last High Level Meeting on HIV ever. This also depends on whether member states dare to give the HIV response teeth with greater political commitments to fight stigma and discrimination, protect human rights and fundamental freedoms and ensure universal access to treatment, care and support for all people living with HIV.

This is our chance to move members states to come to an unequivocal agreement with clear, time bound targets that ensure the rights and protection of people living with HIV and key populations.

A ‘Zero Draft’ of the political declaration, developed by co-facilitators Switzerland and Zambia was just released. This key document lays the foundation of the negotiations towards the High Level Meeting this upcoming June.

This summary contains the key messages and principles we demand from our national delegates.

In 2014, WHO produced the first ever Consolidated guidelines on HIV prevention, diagnosis, treatment and care for key populations. The Guidelines focus on five key populations: men who have sex with men; people who inject drugs; people in prisons and other closed settings; sex workers; and transgender people.

They present an opportunity for civil society, including networks of key populations and people living with HIV, to work with their governments to meaningfully involve key populations in national policymaking and begin investing in their specific needs. The Guidelines also offer an opening for dialogue and action on harmful laws, policies and societal norms that result in the denial and violation of human rights for key populations.

To support community organisation with the implementation of and advocacy for the Guidelines we created a new module for Key Populations to our Community Guide.

This set of modules is designed to be used by communities to support the use of the new resource, Driving the HIV response: A community guide to the WHO 2013 Consolidated Guidelines on the Use of Antiretroviral Drugs for Treating and Preventing HIV Infection.

The downloadable modules cover different topics, and include:

The Global Network of People Living with HIV (GNP+), the International HIV/AIDS Alliance and STOP AIDS NOW! developed the Community Guide in response to the World Health Organization (WHO) 2013 Consolidated guidelines on the use of antiretroviral drugs for treating and preventing HIV. It aims to assist community leaders and civil society organisations to:

better understand the new WHO recommendations and guide country-level discussions on priorities (within civil society and between civil society and government)
ensure the meaningful participation of communities most affected by HIV in national decision-making and planning
advocate for any changes or further research necessary to adapt recommendations to suit their country context
mobilise and prepare communities for the implementation of new recommendations.

GNP+ is proud to present Driving the HIV response: A community guide to the WHO 2013 Consolidated Guidelines on the Use of Antiretroviral Drugs for Treating and Preventing HIV Infection.

The Global Network of People Living with HIV (GNP+), the International HIV/AIDS Alliance and STOP AIDS NOW! developed this Community Guide in response to the World Health Organization (WHO) 2013 Consolidated guidelines on the use of antiretroviral drugs for treating and preventing HIV. It aims to assist community leaders and civil society organisations to:

better understand the new WHO recommendations and guide country-level discussions on priorities (within civil society and between civil society and government)
ensure the meaningful participation of communities most affected by HIV in national decision-making and planning
advocate for any changes or further research necessary to adapt recommendations to suit their country context
mobilise and prepare communities for the implementation of new recommendations.

The guide is designed to be updated regularly, and extra modules will be added as further guidelines are issued by WHO, such as those on key populations and adolescents.

You can download the modules here.

Download here:

“Whoever designed the guide deserves a round of applause because it is really great and we will be putting it to use right away. The question is how can we use this simplification as a model for getting information such as this to the commmunity.”

Dr Rose Wafula, PMTCT co-ordinator at NASCOP (National AIDS and STI Control Program) Kenya

The downloadable modules cover different topics, and include:

better understand the new WHO recommendations and guide country-level discussions on priorities (within civil society and between civil society and government)
ensure the meaningful participation of communities most affected by HIV in national decision-making and planning
advocate for any changes or further research necessary to adapt recommendations to suit their country context
mobilise and prepare communities for the implementation of new recommendations.

The downloadable modules cover different topics, and include:

better understand the new WHO recommendations and guide country-level discussions on priorities (within civil society and between civil society and government)
ensure the meaningful participation of communities most affected by HIV in national decision-making and planning
advocate for any changes or further research necessary to adapt recommendations to suit their country context
mobilise and prepare communities for the implementation of new recommendations.

The downloadable modules cover different topics, and include:

better understand the new WHO recommendations and guide country-level discussions on priorities (within civil society and between civil society and government)
ensure the meaningful participation of communities most affected by HIV in national decision-making and planning
advocate for any changes or further research necessary to adapt recommendations to suit their country context
mobilise and prepare communities for the implementation of new recommendations.

The downloadable modules cover different topics, and include:

better understand the new WHO recommendations and guide country-level discussions on priorities (within civil society and between civil society and government)
ensure the meaningful participation of communities most affected by HIV in national decision-making and planning
advocate for any changes or further research necessary to adapt recommendations to suit their country context
mobilise and prepare communities for the implementation of new recommendations.

The downloadable modules cover different topics, and include:

better understand the new WHO recommendations and guide country-level discussions on priorities (within civil society and between civil society and government)
ensure the meaningful participation of communities most affected by HIV in national decision-making and planning
advocate for any changes or further research necessary to adapt recommendations to suit their country context
mobilise and prepare communities for the implementation of new recommendations.

The downloadable modules cover different topics, and include:

better understand the new WHO recommendations and guide country-level discussions on priorities (within civil society and between civil society and government)
ensure the meaningful participation of communities most affected by HIV in national decision-making and planning
advocate for any changes or further research necessary to adapt recommendations to suit their country context
mobilise and prepare communities for the implementation of new recommendations.

The downloadable modules cover different topics, and include:

better understand the new WHO recommendations and guide country-level discussions on priorities (within civil society and between civil society and government)
ensure the meaningful participation of communities most affected by HIV in national decision-making and planning
advocate for any changes or further research necessary to adapt recommendations to suit their country context
mobilise and prepare communities for the implementation of new recommendations.

The Global Plan towards the Elimination of New HIV Infections among Children by 2015 and Keeping their Mothers Alive (Global Plan) was launched in July 2011 at the United Nations General Assembly Special Session (UNGASS) High Level Meeting by a Global Task Team, led by UNAIDS and PEPFAR.

This plan covers all low- and middle-income countries, but focuses on the 22 countries with the highest estimates of pregnant women living with HIV. The Global Plan sets out how by 2015 countries can work to ensure that mothers are supported to stay healthy and that children are born without HIV.

The civil society representatives on the GSG for the Plan aim to ensure that a wide range of civil society voices are heard as governments, UN agencies, donors and others work to make the Global Plan a reality. This report brings together the voices and messages heard from an online survey and two face-to-face consulta- tions about the Global Plan. This included:

> An online survey in French and English which garnered approximately 140 responses from more than 40 countries during October 2011;
> A community consultation in the Global Village at the International Conference on AIDS and STIs in Africa (ICASA), held in Addis Ababa, Ethiopia in December 2011 with more than 100 ICASA attend- ees, representing more than 20 countries; and
> A closed, by invitation only, consultation with people living with HIV in the Global Village during ICASA. The consultation was facilitated by two women living with HIV and was attended by approximately 40 women and men living with HIV from at least nine countries.

In 2012 GNP+ began the implementation of the recommendations of the Strategic Plan 2011 – 2015. GNP+ prioritises its work according to three guiding pillars:

Global Advocacy,
Knowledge Management
Community Strengthening and Development

The key focus of GNP+’s work is to make the evidence gathered in recent years through various research tools more visible and accessible for use in advocacy by PLHIV and others, and to secure an increased commitment towards community strengthening and development. GNP+ created a detailed 2013 Work Plan, describing 25 projects under four platforms of work, the three platforms above and a fourth of Organisational Strengthening, Management and Improvement. The 2013 Annual Report follows the same structure

In mid-January 2015, women living with HIV came together with the World Health Organisation (WHO) to consult and give input to a global survey on sexual and reproductive health and human rights of women living with HIV. Dr Manjulaa Narasimhan of WHO’s Reproductive Health and Research Department led on conducting the survey, which will inform WHO as it updates its 2006 guidelines on this topic.

Summary Report of Proceedings: COUNTRY TO COUNTRY SHARING MEETING

13–14 December 2013, Nairobi, Kenya

The concept for the Framework for Dialogue was born in 2010 out of a mutually agreed desire for sustained and systematized action-oriented dialogue between faith communities/ religious leaders and networks of people living with HIV for the purpose of contributing to an effective response to HIV at country level.

The first (pilot) dialogue was held in Malawi in May 2012, with further pilots in Ethiopia and Myanmar. Following the pilots, Uganda held its first dialogue in December 2013. Kenya is one of the other countries planning to implement the process in 2014.

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Topic: Community engagement