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Positive Health, Dignity and Prevention for Women and their Babies

A treatment literacy guide for pregnant women and mothers living with HIV

Women living with HIV from eight countries have shared their expertise to shape the content and design of the guide and it was formulated in direct response to a call from communities for up-to-date, evidence-based resources.

Positive Health, Dignity and Prevention for Women and their Babies: A treatment literacy guide for pregnant women and mothers living with HIV is intended for use by networks of women living with HIV, women’s groups, peer educators and others wishing to provide information and guidance to support women living with HIV through the decisions they will need to make before, during and after their pregnancy.

The guide has 12 modules covering issues ranging from human rights to treatment adherence and nutrition. It is made up of three separate tools:

  • facilitator’s manual
  • illustrated flipchart
  • accessible poster

The facilitator’s manual and flipchart are intended to be used together by leaders of support groups, peer educators or lay counselors to facilitate small groups or community sessions with women living with HIV. The poster can be displayed anywhere where it will be seen by women living with HIV and their families, such as: clinic rooms, church halls, waiting rooms and community education spaces.

This guide was developed by members of the Community Engagement Working Group (CEWG) of the Inter-Agency Task Team (IATT) for Prevention and Treatment of HIV Infection in Pregnant Women, Mother and Children, a group committed to strengthening global, regional and national partnerships and programs that address the survival of pregnant women, mothers and children living with HIV.

Family Planning Services and Prevention of Vertical Transmission – Cameroon, Nigeria and Zambia

A new report released by the Global Network of People Living with HIV (GNP+), the International Community of Women Living with HIV (ICW), and other local network partners, calls for dignity and rights in family planning programmes for women living with HIV in Cameroon, Nigeria and Zambia. that calls for discrimination-free family planning services for women living with HIV. The study examined the experiences of women living with HIV in accessing family planning services.

Community Guide Module D: ART for Pregnant Women

This set of modules is designed to be used by communities to support the use of the new resource, Driving the HIV response: A community guide to the WHO 2013 Consolidated Guidelines on the Use of Antiretroviral Drugs for Treating and Preventing HIV Infection.

The downloadable modules cover different topics, and include:

The Global Network of People Living with HIV (GNP+), the International HIV/AIDS Alliance and STOP AIDS NOW! developed the Community Guide in response to the World Health Organization (WHO) 2013 Consolidated guidelines on the use of antiretroviral drugs for treating and preventing HIV. It aims to assist community leaders and civil society organisations to:

  • better understand the new WHO recommendations and guide country-level discussions on priorities (within civil society and between civil society and government)
  • ensure the meaningful participation of communities most affected by HIV in national decision-making and planning
  • advocate for any changes or further research necessary to adapt recommendations to suit their country context
  • mobilise and prepare communities for the implementation of new recommendations.

Building a safe house on firm ground – WHO consultation report with women living with HIV

In mid-January 2015, women living with HIV came together with the World Health Organisation (WHO) to consult and give input to a global survey on sexual and reproductive health and human rights of women living with HIV. Dr Manjulaa Narasimhan of WHO’s Reproductive Health and Research Department led on conducting the survey, which will inform WHO as it updates its 2006 guidelines on this topic.

LIVING2008 Sexual Reproductive Health and Rights Working Group Statement

With treatment and care becoming increasingly available, PLHIV are regaining their health, living longer, fulfilling lives, and planning for their futures. This includes decisions about sex, sexuality and the possibility of starting or expanding families. Despite this, there still prevails an underlying assumption that one’s sexual and reproductive life stops when one becomes HIV positive. Often society at large, health care workers, decision makers and even PLHIV themselves hold this assumption.
For a person living with HIV, dealing with sex means dealing with difficult issues at vulnerable moments and in vulnerable settings. Often people living with HIV are expected to disclose their HIV status before engaging in sexual relations – in some countries it is even a legal obligation, even though this may lead to (gender-based) violence. People living with HIV are expected to initiate and engage in safe sex strategies to prevent the transmission of STIs or transmitting HIV to one’s sexual partner(s). With regards to family planning, people need to be able to make well- informed decisions around conceiving, pregnancy, preventing mother to child transmission and breastfeeding.

Available in English, French, Russian and Spanish