icon
ARCHIVE

By Cedric Nininahazwe, Florence Anam, Omar Syarif, & Alexandra Volgina, GNP+ Programme Managers

1 December 2021

Harmful laws that lead to discrimination, stigma and violence are still hindering global efforts to end AIDS. The United Nations General Assembly has adopted the 2021 Political Declaration on HIV and AIDS, with clear commitments that include creating an enabling legal environment by reviewing and reforming restrictive legal and policy frameworks, discriminatory laws and practices that create barriers or reinforce stigma and discrimination.[1] Although similar commitments were made in the 2016 Political Declaration on HIV and AIDS, evidence to date shows slow progress and little concrete action by countries, including those with the highest HIV burden. As we commemorate World AIDS Day, GNP+ calls on all stakeholders to redouble efforts to change the harmful legal environments that restrict the rights and undermine the dignity of people living with or most affected by HIV.

Outdated and non-evidence-based legislation now constitutes one of the main challenges to an effective AIDS response. Most of the countries that criminalized HIV transmission in the 1980s and 90s did so as an emergency response mechanism to the HIV pandemic threat, without scientific data to rightly inform their legislation. However, despite decades of progress and multiple advances in HIV research and responses, many of these laws have not been changed and remain in force. A recent global overview compiled by the HIV Justice Network (2019) finds that 72 countries have laws that specifically allow for HIV criminalization, either because the law is HIV-specific, or because HIV is specified as a disease covered by the law.[2] Ironically just two years later, most of these countries have also adopted the 2021 Political Declaration on HIV and AIDS, suggesting that such commitments are merely a ritual rather than a reality, something to be signed and then forgotten until the next round. When will this stop? 

Since the beginning, people living with HIV and their families have faced daunting levels of stigma and discrimination due to their perceived or actual HIV status. Many have lost their homes, families, sources of income, their dignity and even their lives as a result. It is hard to believe that 40 years after the start of the AIDS epidemic, we are still fighting for the legal and structural environment that would enable us all to access HIV prevention and treatment without fear or blame.” – Florence Anam, GNP+

The available data support the fact that laws criminalizing HIV transmission and key population communities are counterproductive and hinder all other efforts in the global AIDS response. A systematic review and analysis of sex work laws and sex workers’ health in sub-Saharan Africa, for example, shows that HIV prevalence among sex workers was 39% in countries that criminalized sex work compared with 12% in countries where sex work was partially legalized.[3]

In fact, the legal environment leads to multiple and overlapping experiences of stigma, discrimination and violence for key populations and people living with HIV, making it harder for them to access HIV and SRH services. Recent research shows that countries without criminalized legal environments have achieved better health outcomes in terms of viral load suppression and HIV status knowledge.[4]

“Without joint and robust action towards decriminalization of HIV transmission and key populations, all of the efforts to end AIDS by 2030 will be useless.” – Alexandra Volgina, GNP+

The Global AIDS Strategy’s 10-10-10 targets on societal enablers call for member states to end all inequalities faced by people living with HIV, key populations, and other priority populations by 2025, by reducing to 10% or less the proportion of  women, girls, people living with, at risk of and affected by HIV who experience gender-based inequalities and sexual and gender-based violence;  countries with restrictive legal and policy frameworks that lead to the denial or limitation of access to services; and people experiencing stigma and discrimination.

This World AIDS Day, GNP+ urges governments, policymakers, civil society and donors to take collective action to challenge the criminalization of HIV transmission and key populations on the basis of sound scientific data. To achieve this, GNP+ specifically calls for the following:

  • Government and policymakers to decriminalize HIV transmission and key populations, and to expand the civic space for communities to speak up for their rights
  • Communities and civil society to work in solidarity to challenge criminalization of HIV transmission and key populations and to hold governments accountable for their commitments to create enabling legal environments 
  • Donors to fund communities to engage in monitoring and accountability mechanisms to improve service delivery and accelerate policy change and implementation.

[1] General Assembly resolution 75/284/, Political Declaration on HIV and AIDS: Ending Inequalities and Getting on Track to End AIDS by 2030, A/RES/75/284 (9 June 2021), available from undocs.org/A/RES/75/284.

[2] HIV Justice Network (2019) Advancing HIV Justice 3, available at https://www.hivjustice.net/wp-content/uploads/2019/05/AHJ3-Full-Report-English-Final.pdf (accessed 24 November 2021).

[3] Platt L, Grenfell P, Meiksin R, Elmes J, Sherman S, Sanders T et al. (2018) ‘Associations between sex work laws and sex workers’ health: a systematic review and meta-analysis of quantitative and qualitative studies’, PLoS Med. 15:e1002680.

[4] Kavanagh, M, Agbla, S, Joy, M, Aneja, K, Pillinger, M, Case, A, Erondu, N, Erkkola, T, & Graeden, E (2021) ‘Law, criminalisation and HIV in the world: have countries that criminalise achieved more or less successful pandemic response?’ BMJ Global Health, 6(8), e006315.

All too often, we do not hear from those people who matter most. They are being criminalised, discriminated against, and pushed aside, because of who they are or what they do.

Therefore, on World Aids Day (1 December) and at ICASA -the International Conference for AIDS & STIs in Africa (6-11 Dec)-, we are giving voice to those people who need to be heard -from communities most at risk of HIV to changemakers wanting to make a change. After all, these communities, more than anyone else, know what works best for them. They should be given the space to make the change that they want to see. As the Love Alliance, we gathered love letters from communities all over the world. With the message ‘what love means to me…’, communities describe the world that they want to see and what politicians and funders should do to make that happen.

We are delighted that our partner and the funder of the Love Alliance, the Dutch Ministry of Foreign Affairs, also contributed by letting us know what love means to them. Check out the video of Pascalle Grotenhuis, Director Social Development and Ambassador for women’s rights and gender equality. We look forward to seeing that their example is followed by other policymakers and funders to end AIDS globally.

So why now? All UN member states agreed to end AIDS and the HIV pandemic by 2030. We must continue to combat HIV. We can do that by investing in equal access to HIV prevention and treatment for everyone, and by getting rid of discriminatory laws that exclude people. It is time to end inequalities to end AIDS by 2030.

What does love mean to you? Share what love means to you and use the hashtag #LoveAlliance and share your message!

Share what love means to you in max 3 sentences on social media and use the hashtag #LoveAlliance. You can do this by posting a short video of yourself, starting by saying ‘what love means to me…’ or by writing a short message, also starting with ‘what love means to me…’.

Join us on this journey working towards health and human rights for all! #LoveAlliance

Following the announcement of the decision by President Biden to host the 7th Global Fund Replenishment conference in the United States; The Global Network of People Living with HIV (GNP+), The Global Network of Sex Work Projects (NSWP), The Global Action for Gay Men’s Health and Rights (MPact), The Global Action for Trans Equality (GATE) and The International Network of People Who Use Drugs (INPUD) urge the Global Fund and all stakeholders and partners to ensure the 7th Global Fund Replenishment cycle sustains a focus on the aspiration, and commit to action to keep communities at the centre.

The Global Fund Replenishment Conference brings together leaders from governments, civil society, the private sector, and communities affected by HIV/AIDS, TB, and Malaria. Communities have always played a central role in advocating for resources for the Global Fund’s Replenishments and domestic financing.

We are concerned that the decision to host the Global Fund Replenishment Conference in the United States will compromise meaningful community participation and engagement. The legal travel restrictions in the United States have historically been a barrier for key populations such as sex workers, people who use drugs and people who have been formerly arrested, people from several Muslim countries and many Global South advocates to enter the country. The United States’ travel bans, and immigration policies have excluded, challenged, and limited the engagement and participation from members of these communities in high-level global events. 

Only by consistently promoting meaningful involvement of People Living with HIV and Key Populations throughout all key decision-making processes, will the Global Fund ensure that its new strategy works to address health inequities, gender inequalities and human rights barriers, such as the criminalization of key populations and legal barriers that continue hindering the fight against HIV, TB, and malaria.

Funding the HIV, TB, and malaria Responses:

We call on all donors and countries to remain committed to financing the HIV, TB, and malaria responses by fully funding the Global Fund and financing communities in the HIV, TB, and malaria responses. As outlined in the 2020 Global Fund Results Report, progress in the HIV, TB and malaria response is reversing for the first time. We call on donors to step up and help get back on track to ensure the needs of key populations and people living with HIV, TB and malaria are met.

Funding Communities and Key Populations: 

The Global Fund must prioritise funding for communities and community-led interventions by creating a direct funding stream for key populations. Strong community systems are the foundation of health systems, and these must be adequately resourced. The availability of a direct funding stream for key populations is particularly vital in countries where people are criminalised. We call on the Global Fund and all donors to prioritise people living with and affected by HIV, TB and malaria and key populations and relatedly community systems strengthening.

The new Strategy marks an opportunity for the Global Fund to finance community-led organisations, including key population-led organisations, to play our rightful role at the centre of the HIV, TB, and malaria responses. Covid-19 has once again proven that community-led organisations are the first to rapidly adapt and respond to the needs of people. Directly resourcing community-led organisations is the most value-for-money investment that the funds raised at the 7th Replenishment can make.

By Florence Anam, Love Alliance Programme Manager

19 November 2021

It’s World Children’s Day! Should we be celebrating?

World Children’s Day is celebrated annually on 20 November to commemorate the Declaration of the Rights of the Child by the UN General Assembly on that date in 1959. The theme this year is ‘Investing in our future means investing in our children’. 

But when it comes to HIV, children worldwide have little to celebrate. Despite all the progress made in both prevention and treatment, children continue to be affected disproportionately by HIV. In 2020 alone, 350,000 children acquired HIV and 210,000 died of AIDS-related illnesses.

Significant gaps persist globally in the testing of infants and children exposed to HIV. In 2020, approximately 800,000 children aged 0-14 years living with HIV were not on antiretroviral treatment – a significant drop from 2019. Only 40% of children living with HIV and on treatment had suppressed viral loads, compared to 67% of adults. 

Investing in our future means that children exposed to and living with HIV must have access to timely diagnosis and effective, child-friendly, and age-appropriate treatment and care in order to improve their health and save lives. It means that mothers and caregivers have the information, tools and support they need to protect their children. It means there are adequate human resources for health to ensure that service delivery addresses the needs of the communities, with access to treatment, prevention and testing tools for all who may need them. It also means that the rights of children and their caregivers are respected in an environment with progressive laws that reduce inequalities, address stigma, discrimination, criminalization, and violence. 

Living up to global commitments

In the last two years, huge scientific and policy progress has been realized at the global level thanks to intensified advocacy and collaborative action from global health actors, communities, and civil society organizations. 

The Global AIDS Strategy and the UN Political Declaration both adopted by member states commit to eliminating vertical transmission of HIV and ending paediatric AIDS by 2025, as well as to the 95-95-95 targets for testing: 95% of people living with HIV know their HIV status; 95% of people who know their status are on treatment; and 95% of people on treatment have a suppressed viral load.

These political advances coincide with big steps forward in pediatric HIV treatment. New World Health Organization (WHO) treatment guidelines recommend Dolutegravir (DTG)-based HIV treatment for all children, with dosing recommendations for infants and children over four weeks of age and more than 3 kg. The guidelines also make progressive recommendations for Point of Care testing for early infant diagnosis and viral load monitoring. Pediatric DTG (pDTG) does not require special storage, is taken once a day, dissolves in liquid and tastes like strawberries. Not only is this treatment great for the babies, but also much easier for parents and caregivers to administer. 

However, experience has shown that we must go beyond biomedical interventions in order to end inequalities and make accessible these cutting-edge prevention and treatment options for children most affected by HIV. 

Our call to action

  • Invest in treatment literacy: Many parents and caregivers still do not have access to clear, accurate information about HIV testing and treatment options for infants and children. Effective adherence depends on good understanding of treatment benefits and side effects, and the chance to ask questions about any concerns. It is vital to support parents and caregivers with the information and tools they need to be able to meet their children’s HIV prevention and treatment needs.
  • Invest in protecting the rights of families affected by HIV: A hostile legal or social environment presents many barriers to accessing services, drives inequalities and promotes exclusion. Addressing stigma, discrimination and unfavorable laws requires resources, concerted action, and effective enforcement.
  • Invest in community-led services and support structures: Communities know best what they need, and are best placed to create safe and trusted spaces for service provision and follow-up.

Investing in communities is the best way to ensure that children living with HIV not only survive but thrive – and that is something worth celebrating!

Beyond LIVING partnership of the Global Network of People Living with HIV (GNP+), the International Community of Women Living with HIV (ICW) and the Global Network of Young People Living with HIV (Y+ Global) in partnership with Brighton and Sussex Medical School (BSMS) are launching the Resilience+ video diaries – a collection of stories of resilience among people living with HIV during the COVID-19 pandemic.

Resilience+ is a research and advocacy initiative led by BSMS and Beyond LIVING, working with national civil society organisations in the UK, Zimbabwe, Philippines, Argentina, and Trinidad. Additional support is provided by the UKRI Higher Education Innovation Fund.

There are three specific objectives of Resilience+:

  1. To explore the coping mechanisms and resilience of people living with HIV during the Covid-19 pandemic.
  2. To define the ‘umbrella of resilience’ among people living with HIV by exploring their psychological, social and community sources of strength and agency.
  3. To co-produce a video on the resilience of people living with HIV during Covid-19, which will aim to spread hope and re-imagine pandemic responses.

We are currently collecting stories from the UK, Zimbabwe, Philippines, Argentina and Trinidad to capture different pandemic, cultural and policy contexts. 

Find out more about Resilience+ here

Join the resilience+ watch parties in your region and in five launguages (Arabic, English, French, Spanish and Russian). Find details on our social media platforms:

  • Facebook – @GNPplus
  • Twitter – @gnpplus
  • Instagram – @gnpplus

Watch our video below to find out more about Resilience+.

It is with great joy to announce that Cedric Nininahazwe has joined GNP+ as the Love Alliance Global Advocacy Manager based in our Amsterdam office.  

Cedric has worked with several key population and community organizations for the last 15 years with increasing responsibility and authority in each of his roles; he is joining GNP+ from Y+ Global, where he has served as the Director of Programmes, Management and Governance since 2016. Cedric brings a wealth of knowledge about advocating for change, working with communities, and holding decision-makers accountable. 

‘’My advocacy experience started 15 years ago when I joined the Burundian network of young people living with HIV; throughout the journey, my passion for serving others has continued to grow along with my experience of influencing change.’’

Cedric is a lawyer by profession and has over the years built his career as a human rights activist, especially for young people, access to HIV and SRHR services, and education.

‘’My law degree has always been my intellectual weapon and source of knowledge to achieve the best of myself in human rights activism and building capacity of my fellow young leaders, I am excited to join GNP+ and the love alliance partnership, this is another opportunity for me to serve my community.’’ 

We are excited to have Cedric Nininahazwe on board; we believe his experience will be an added value as we invest in addressing structural barriers to SRHR, gender inequality, decriminalisation, financing for key populations, increased access to healthcare, and justice of people living with HIV and key population communities in all their diversity.  

We are profoundly saddened to learn of the death of former GNP+ Board and staff member Rick Stephen. Rick was a powerful HIV activist and long-term survivor, playing a key role in the HIV movement from the early days in the National Association of People Living with HIV in South Africa (NAPWA) to his coordinating efforts in several international AIDS conferences.

His activism and pragmatism were evident at the Durban 2000 International AIDS Conference ‘Breaking the Silence’, where as well as protesting against the denialism of the South African government he organised the collection of donated HIV medicines from all over the world for distribution to people living with HIV in South Africa. Rick also managed the very successful lounge for people living with HIV at AIDS2000.

Always practical and a ‘doer’, in 2003 he coordinated the 11th International conference for people living with HIV and AIDS in Kampala, Uganda.

During and after Rick’s time as a Board member in the late 1990s, he worked with GNP+ on many initiatives and especially helped guide and support new leadership and board members with his wealth of expertise, calm approach and wise advice. Rick continued to work in the sector, was a mentor and inspiration to many, always seeking to improve services and stand up to HIV stigma. Most recently, Rick was employed at the Foundation for Professional Development as an Operations Manager for their Adherence Programme. Lifelong and loyal friend to many activists, Rick knew how to enjoy life, did not take things too seriously but at the same time did not suffer fools gladly. Two people who worked alongside Rick during his time at GNP+ remember him fondly:

Stu Flavell: “I’m so grateful for Rick’s friendship and his work on behalf of HIV-positive people at GNP+. Rick was a lion and the quality of life of HIV-positive people far and wide was indeed improved by his service.”

Shaun Mellors: “He was Rick… quiet, focused, just getting on with things. No need for limelight, recognition or presence… just Rick. He made an enormous contribution to the HIV response in South Africa and globally. May it be remembered and celebrated.”

Having lost many friends and loved ones through the devastating period of HIV denialism and lack of treatment access in South Africa in the 1990s, Rick overcame many health challenges himself as well as living with HIV for more than 30 years. He sadly lost his battle to COVID on 2 August. Our heartfelt condolences to his husband Andrew Hammond, family, friends and loved ones. Rest in power, dear Rick.

28 July 2021: World Hepatitis Day takes place every year on 28 July, to raise awareness of the silent epidemic that is viral hepatitis.  

This year’s theme is ‘Hepatitis Can’t Wait’ – marginalized populations, including children, people who inject drugs, indigenous peoples, and people living with HIV can’t wait for late diagnosis for viral hepatitis, we need to act now and protect those hardest hit from viral hepatitis, especially hepatitis D which is preventable.

Chronic hepatitis B and C are life-threatening infectious diseases that cause severe liver damage, cancer, and premature death. And, more than 300 million people are living with the hepatitis B or C virus. In the past few years, we have seen changes in global responses to viral hepatitis infections, especially Hepatitis B and C infections. However, the framework has failed to provide an adequate environment to address global hepatitis D infection.

According to WHO, Hepatitis D affects nearly 5% of people with chronic infection of the hepatitis B virus. Hepatitis B and D virus co-infection is considered the most severe form of chronic viral hepatitis due to more rapid progression towards liver-related death.  

However, we have seen very little attention given to Hepatitis D as public health threat despite its close link to hepatitis B infection, where it causes 1 out of 5 cases of liver disease and liver cancer among people infected with Hepatitis D. 

We have also seen minimal information available to allow for robust strategy development to respond to this threat. WHO’s 2022 – 2030 Strategy Development on HIV, Viral Hepatitis, and STIs has not articulated this need into concrete strategies and actions. At the same time, we have seen very little investment given to improve technologies in diagnosing and treating Hepatitis D.  

‘I was diagnosed accidentally in Russia – there is no routine testing for Hepatitis D, even in areas where we know it exists (as it was in my city Saint-Petersburg), and there is no cure for it either, says Sasha Volgina, Programme Manager at GNP+.   

‘Traditionally it is treated with pegylated interferons alpha – with severe side effects and a low success rate. Most people living with hepatitis D will need to undergo liver transplantation as rescue therapy to be cured. However, this treatment is not available for people living with HIV in countries where stigma and discrimination are high.’ 

‘In Russia or other countries of post-Soviet Union, there were zero liver transplantations done for HIV positive people, says Volgina. 

‘A Year ago, GNP+ and partners (UNAIDS, HIV Legal Network, and others) helped a man living with HIV from Russia to prove he cannot receive a liver transplant in Moscow because of his HIV status and needed to get asylum in Germany to receive treatment. Together with partners, we managed to get him asylum, and he’s now in hospital waiting for a liver transplant – however, he is the exception.’ 

We call on WHO to seize the opportunity during its new strategy development to raise awareness and mobilize commitment from global health stakeholders, including governments, donor countries, and pharmaceutical companies, to ensure hepatitis D response is well placed in the new strategy, primarily to address the following immediate needs:

  • Enhanced hepatitis B testing to include hepatitis D diagnoses
  • Better access to hepatitis B immunization for people living with HIV as a means of prevention
  • Treatment education program for people living with HIV and affected communities
  • Robust R&D framework on hepatitis D testing and treatment
  • Increased funding for harm reduction program globally

END.

Joint Press Release

Global Networks of People Living with HIV: ‘Call to Prioritize People Living with HIV for the COVID Vaccine.

Cape Town, South Africa: The Global Network of People Living with HIV (GNP+), International Community of Women Living with HIV (ICW), and the Global Network of Young People Living with HIV (Y+ Global) are deeply concerned by the findings from a World Health Organization (WHO) report indicating that HIV infection is a significant independent risk factor for both severe and critical COVID-19 presentation at hospital admission and in-hospital mortality. 

The report released at the 11th International AIDS Society Conference on HIV Science (IAS 2021) found that the risk of developing severe or fatal COVID-19 was 30% greater for people living with HIV compared to people without HIV infection. 

These findings are gravely concerning and further prove the urgent need to prioritise people living with HIV as they are a high-risk population. “Last year at the beginning of COVID-19, we heard from networks of people living with HIV who were worried about having to deal with double pandemics and what this means for their health, as already some countries had to deal with ARV stock-outs exacerbated by lockdown regulations and redirecting of funds for HIV”, says Sbongile Nkosi, Co-Executive Director at GNP+. 

Globally there are an estimated 38 million people living with HIV, of which 25.7 million are from Africa. However, data shows that less than 3% of people on the continent have received a single dose of the vaccine and less than 1.5% have received both doses. The disadvantaged access to vaccines is mainly driven by the vaccines hoarding done by the  richer countries in the bid to protect the profits of their pharmaceutical corporations instead of saving lives.

“We have seen the disparities in our communities for people living with HIV, especially for people from key populations. In Eastern Europe we have had some of the highest death rates per capita and these losses in our communities are staggering. We need to prioritize people living with HIV for the vaccine”, says Olena Stryzhak, Global Chair at ICW.

The report indicates that only 40 out of 100 countries have people living with HIV on their priority list for vaccines leaving many people who need the vaccine out of its reach. We applaud the countries and governments that have rightfully prioritized people living with HIV for the vaccine and we call upon governments, especially those with a higher burden of HIV, to add people living with HIV on the priority list.The HIV community is on the road to lose all progress achieved toward ending AIDS. We cannot afford to lose lives of people at the political injustice that re-affirms the already existing inequalities.

We are also hearing deeply concerning anecdotal evidence of people living with HIV hiding their HIV status to qualify for a vaccine as a number are being rejected access as brought to our attention in a robust discussion by our Life Force who led our Beyond LIVING process. 

As we internalize this news, we at the global networks of people living with HIV will be working with our peers at country level to create awareness and support vaccine uptake by people living with HIV, and continue to document and put attention to the challenges that we experience in accessing this very important intervention that could save millions of lives. 

Like the People’s Vaccine movement, Y+ Global, ICW and GNP+ call upon all governments and pharmaceutical companies to equitably share vaccine doses, support the TRIPS waiver at the WTO, invest in developing countries’ manufacturing capacity, and share the technology.

END.

Note to Editors:

The following people are available for interviews:

  • GNP+ – Sbongile Nkosi
  • Y+ Global – Tinashe Rufurwadzo
  • ICW – Jessica Whitbread 

Please contact Lesego Tlhwale: ltlhwale@gnpplus.net to organise an interview.

The role of civil society in realising the objectives of the 2021 Political Declaration 

UN member states gathered on 8–11 June 2021 for the 2021 UN General Assembly High-Level Meeting (HLM) on HIV and AIDS. The most important outcome of the HLM, the Political Declaration on HIV and AIDS: Ending Inequalities and Getting on Track to End AIDS by 2030, was adopted during the HLM by most UN Members States. Now available is an Advocacy Brief, produced by the Multi-Stakeholder Task Force to assist Civil Society Organisations to keep governments and stakeholders accountable for the outcomes of the HLM.

Introducing the Multi-Stakeholder Task Force and the Love Alliance

This follows an engaging period in which, through the leadership of the Multi-Stakeholder Task Force (MSTF), Community and Civil Society Organisations effectively engaged in the preparation of the HLM and contributed to the development of the Political Declaration.

GNP+ and Aidsfonds were selected by UNAIDS as the NGO co-conveners of MSTF and coordinated the participation of Community and Civil Society Organisations in this process. The partnership that supported this engagement is the Love Alliance. The Love Alliance, a new five-year programme (2021-2025) funded by the Dutch Ministry of Foreign Affairs, is based on an unwavering commitment to protecting, promoting and fulfilling sexual and reproductive health and rights (SRHR) globally, unifying people who use drugs, sex workers and LGBTIQ+ movements, and amplifying the diversity of voices in these communities.

One of the key advocacy priorities for the Love Alliance is to influence key global strategy and planning processes, like the UNAIDS strategy development process and by extension the HLM process, the Global Fund strategy development process, and Generation Equality among others in order for the community voices to be well presented in the outcomes.

Key highlights and documents of the HLM

Some of the key highlights of the HLM experience include supporting MSTF engagement with UNAIDS and the office of the president of the UN General Assembly to prepare and execute a successful Multi-Stakeholder Hearing on 23rd of April, as well as the High-Level Meeting itself. Additionally, the team developed a community HLM engagement guide, coordinated a 3-part webinar series in 6 languages to support community engagement in the process, and supported the development of the Civil Society Declaration for the 2021 High-Level Meeting on HIV and AIDS, with more than 800 signatories. And now there is also the Advocacy Brief.

The work has just begun!

The HLM process may have come to an end and the Political Declaration adopted, but for many of us, the work has just begun! Civil Society has a multitude of roles to play, from implementation to advocacy and accountability, as well as taking corrective action if governments fall short of their commitments. We must begin to develop and align advocacy strategies in our countries and communities, in order to make a difference and end AIDS by 2030.

Keeping governments and stakeholders accountable

In closing out the 2021 HLM engagement program, the Love Alliance is excited that the MSTF worked together to develop the Advocacy Brief. The document has been developed to guide communities and Civil Society on how to engage in accountability processes aimed at keeping governments and stakeholders accountable to the commitments outlined in the PD. Onwards!

It is with profound sadness that GNP+ learns of the untimely passing of Manuel da Quinta – a tireless champion of the rights of all people living with HIV and a strong ally of the global movement. In more than two decades at UNAIDS, and previously as a community activist, Manuel consistently strove to dismantle injustice while amplifying the voices of those most affected by it. His enormous energy, creativity and humour contributed immeasurably to a range of GNP+ initiatives, including the PLHIV Stigma Index, the LIVING partnership and our work around Positive Health, Dignity and Prevention.

Julian Hows (GNP+ 2010-2017 and now at HIV Justice Network) remembers: “Manuel understood, championed and fought for the rights of people living with HIV, the LGBTQ community and for humanity. Always approachable, always going the ‘extra’ mile and always smiling whatever the adversity. I join many others in his global family as we mourn his passing and remember the difference he made to the lives of all those he touched.”

Farewell to a dear comrade who will be hugely missed. We mourn, we remember and we celebrate Manuel’s life of service.

The Multi-Stakeholder Task Force welcomes the adoption today by the United Nations General Assembly of the 2021 Political Declaration on HIV and AIDS.

Four decades after the US Centers for Disease Control and Prevention (CDC) reported the first known cases of HIV/AIDS in its historic report of June 5 1981, the 2021 Political Declaration on HIV/AIDS represents a transformational moment in the global AIDS response. Communities and civil society voices calling to get back on track to end AIDS by 2030 through supporting a fully funded, human rights- and evidence-based response have been heard by the global community.

We affirm the progress represented by the Political Declaration, even as we are disappointed by some critical omissions and weaknesses. We pledge our action and vigilance to ensure that these are addressed as the work of moving towards an AIDS-free world continues.

Unsurprisingly, the process leading to this week’s High-Level Meeting on HIV/AIDS and the new Political Declaration has exposed once again the conflicting views of UN member states on equality, human rights and the inclusion of key populations – sex workers, gay, bisexual and other men who have sex with men, transgender people, people who use drugs, and people in prison and other closed settings – along with women and girls, and youth. It has also exposed conflicts over intellectual property barriers to lifesaving medicines. 

At this High-Level Meeting, however, for the first time in UN history, such a resolution was adopted by voting, at the request of the Russian Federation, which broke the consensus on issues related to human rights, harm reduction and law reform. Of all the votes cast, 165 member states voted for and four against, i.e. the Russian Federation, Belarus, Nicaragua and the Syrian Arab Republic. In so doing, they have deliberately undermined the global consensus on the approach needed to end AIDS as a public health threat by 2030.  

Reaching consensus was a painful process which will cost lives as humane and scientifically proven interventions regarding sexual and reproductive health and rights (SRHR), comprehensive sexuality education, harm reduction, sexual orientation and gender identity, community leadership, decriminalisation and repealing punitive laws, as well as TRIPS waivers to make essential medical technologies and innovations more equitable available, were aggressively opposed by some member states. Most of these crucial areas were either diluted to a point where commitments become toothless, or completely removed from the text during negotiations over the Political Declaration.

No fewer than 73 concessions were made to Russia during negotiations to build a consensus document. Russia’s refusal to accept the painstakingly negotiated consensus and its decision today to force a vote on the Political Declaration represents an attempt to undermine the outcome of the High-Level Meeting on AIDS and an evidence- and rights-based global AIDS response.

Nevertheless, there is much to welcome in the Political Declaration. We are glad that key populations are at least named within it, despite the opposition of some member states that led to watered-down wording allowing countries to define which populations are at the centre of their response. Key populations have been at the heart of community-led responses to HIV for 40 years. Their continued leadership, along with the leadership of other vulnerable populations  women, adolescents and young people, Indigenous peoples, and people with disabilities  is essential and deserves greater recognition. We are concerned that by invoking national legislation, the Political Declaration may enable member states to ignore relevant global and national data when defining key and vulnerable populations for their own countries, and it gives them too much leeway to avoid reforming punitive legislation that holds back an effective HIV response.

Despite these losses and other limitations related to national sovereignty clauses, the Political Declaration on HIV/AIDS adopted today by UN member states broadly aligns with the priorities of the new Global AIDS Strategy and highlights the urgent need to address the structural barriers of discrimination, gender inequality, criminalisation, underfunding and exclusion of people living with HIV, key populations and other priority populations vulnerable to HIV, including migrants and people in conflict zones and humanitarian settings.

For the first time ever, transformative and measurable targets on programmes that can make the end of AIDS a reality are part of the Political Declaration on HIV/AIDS adopted by the UN General Assembly.

One of the most important wins is the inclusion of the 10-10-10 targets on societal enablers, calling for member states to end all inequalities faced by people living with HIV, key and other priority populations by 2025, by reducing to 10% or less the proportion of:

  • women, girls, people living with, at risk of and affected by HIV who experience gender-based inequalities and sexual and gender-based violence;
  • countries with restrictive legal and policy frameworks that lead to the denial or limitation of access to services;
  • people experiencing stigma and discrimination.

Equally critical is the commitment to support community leadership and ensure that an increased proportion of HIV services are community-led, particularly testing and treatment services, key population HIV prevention programmes, and programmes to support the achievement of societal enablers.

Another transformative win is the prioritisation of combination HIV prevention interventions that meet the diverse needs of key and priority populations, including condom promotion and distribution, pre-exposure prophylaxis, post-exposure prophylaxis, voluntary male medical circumcision, harm reduction, sexual and reproductive health-care services, and enabling legal and policy environments.

Particularly welcome also are the commitments to eliminate vertical transmission of HIV and end pediatric AIDS by 2025, as well as to the 95-95-95 targets for testing: 95% of people living with HIV knowing their HIV status; 95% of people who know their status on treatment; and 95% of people on treatment having a suppressed viral load.

Because none of these commitments means much without financing, the Multi-Stakeholder Task Force welcomes the commitment to fully fund the AIDS response, notably by enhancing global solidarity to meet the target of 0.7% of gross national income as development aid, and increasing annual HIV investments in low- and middle-income countries to US$29 billion by 2025.

We commend H.E. Mr. Mitchell Fifield, Permanent Representative of Australia, and H.E. Mr. Neville Gertze, Permanent Representative of Namibia, for their work as co-facilitators of the High-Level Meeting on HIV and AIDS in 2021.

Governments, donors, technical partners, the private sector and communities and civil society must now align efforts – and translate global commitments into local action. We must focus our work on the transformative elements of the Global AIDS Strategy endorsed by UN member states: strong political leadership, adequate funding, including for community-led responses, human rights-based and multisectoral approaches, and the use of scientific evidence to guide HIV responses and strategies.

These efforts will include work on issues that the Political Declaration does not address adequately, or at all – because it is on these issues too that the HIV response will stand or fall. Community-led responses – by key populations, women, adolescents and young people, and all other vulnerable communities – will continue to be at the heart of the struggle to end AIDS by 2030. We will argue for the reform of laws that criminalize and punish key populations. We will advocate for fully funded, community-led harm reduction programmes. We will push for the rights and needs of Indigenous peoples, people with disabilities, and migrants to be properly addressed. We will advocate for comprehensive sexuality education that enables adolescents and young people to live fulfilling lives, and sexual and reproductive health services for them and for adults. We will campaign for the proper recognition of sexual orientation and gender identity. And we will push for TRIPS flexibilities that will make medicines and technologies for prevention, diagnosis and treatment of disease available, accessible and affordable to all.

The annual review of progress in delivering on the Political Declaration – and the 2026 High-Level Meeting on HIV/AIDS itself  are important mechanisms for communities, civil society and parliaments to hold our governments to account. We must keep track of progress on the 2025 targets and the other commitments made in the new Political Declaration, and course-correct rapidly when gaps or challenges emerge.

The stakes are high: in four decades, the epidemic has cost the world over 75 million HIV infections and 32 million lives lost. The task of accountability is ours to realise! It is one we intend to fulfill, empowered by the resilience, experience, and expertise of the communities most directly affected by HIV, and knowing that the 2021 Political Declaration puts the world on the path towards the global goal of ending AIDS by 2030.

There is a crisis in the HIV response. Over the last five years, the world has failed to meet any of the targets for prevention, diagnosis and treatment set out in the 2016 Political Declaration on HIV/AIDS, with progress on HIV prevention lagging particularly far behind. The 2021 high-level meeting on HIV/AIDS – and the Political Declaration that results from it – is the last chance to create sustained momentum for the policies, programmes and funding that are needed to end HIV as a global health threat by 2030.

Now more than ever, evidence-based responses and renewed political will are called for –especially in face of the additional burdens imposed by the Covid-19 pandemic. In order to focus efforts and resources where they are most needed, we call for a Political Declaration that:

RECOGNIZES explicitly who is most at risk of HIV ACKNOWLEDGES why this is so
COMMITS to fully fund and support effective responses HOLDS ACCOUNTABLE Member States for their actions

Together we can END INEQUALITIES, END AIDS if we ACT NOW!

The UN General Assembly 2021 High-Level Meeting on HIV/AIDS (HLM2021AIDS) is here! In the coming week, starting 7 June, there will be many events addressing the needs for community leadership and human rights- and evidence-based combination prevention, treatment and care. This page will inform you how to get involved and join the civil society #WeAreHLM movement. 

800+ civil society organisations and leaders endorsed the CS Declaration Statement

More than 800 civil society organisations and leaders endorsed the Civil Society Declaration for the United Nations General Assembly 2021 High-Level Meeting on HIV/AIDS. Together we can END INEQUALITIES, END AIDS if we ACT NOW!

Join the #WeAreHLM movement on social media 

Become part of a global civil society movement that advocates for sound and united global leadership that is fully committed to addressing the HIV epidemic as well as other existing and new epidemics in a way that brings the world together and ends inequalities. Access the social media toolkit with content that you can easily share on your social channels during the High-Level Meeting, and join the movement by using the hashtags #WeAreHLM and #PressureOn. 

Attend events 

Register for HLM2021 for free before signing up for any events below

Monday 7 June

Tuesday 8 June 

Wednesday 9 June

Thursday 10 June

Friday 11 June

Statement by GNP+ on the occasion of the 74th World Health Assembly – Agenda item 26.4, Global health sector strategies on, respectively, HIV, viral hepatitis and sexually transmitted infections.

GNP+ welcome the proposed decision by the EB to the WHA to request the DG to develop a new global health sector strategy on HIV, viral hepatitis and sexually transmitted infections for the period 2022-2030.

We welcome the emphasis on HIV self-testing, elimination of vertical transmission, and cervical cancer.  We appreciate the focus on concrete plans and results for Hep B, C and TB and we look forward to further strengthening this integration across health systems.

However, there is an urgent need to address the structural and intersectional barriers of discrimination, gender inequality, criminalization, underfunding and exclusion of key populations[1] and other affected populations[2].

We further want to stress the urgent need to engage civil society and communities more meaningfully. We have seen key population communities supporting health facilities in outreach and adherence, but key populations & communities need to participate structurally in critical decision-making that impacts their lives.

We are ready to engage in the strategy development process; the recent experience of GAS development can be used as a blueprint towards inclusive, organized, and effective community engagement. 

Civil society and communities also need to be involved in consultations and the preparation phase of guidelines development, such as research of demand and needs, ethics, and data collection. This will help efficient and sustainable decision-making and will positively impact achieving results and accountability.  

Member states must prioritize and invest in what science proved to work to end AIDS and to challenge the structural barriers of criminalization and exclusion of key and vulnerable populations. It is vital that the new WHO global health sector strategy on HIV, hepatitis and STIs will be aligned to the commitments and targets of the new 2021 Political Declaration on HIV/AIDS, the GAS, and the new Global Fund strategy beyond 2022 to ensure that international and domestic investments are directed towards the critical gaps. 

We call upon member states to address the priorities of the civil society declaration for the 2021 HLM on HIV/AIDS in the development process of the global health sector strategy on HIV, viral hepatitis and sexually transmitted infections 2022-2030 and sign the Civil Society Declaration for the 2021 HLM on HIV/AIDS.


[1] gay men and other men who have sex with men, people who inject drugs, sex workers, transgender people, people in prisons and other closed settings; and all people living with HIV

[2] women and adolescent girls and their male partners, young people, persons with disabilities, ethnic and racial minorities, indigenous peoples, people living in poverty, migrants, refugees and people in humanitarian emergencies and conflict and post-conflict situations

Multi-Stakeholder Task Force for the 2021 High-Level Meeting on HIV and AIDS Issued on 10 May 2021.

The Multi-Stakeholder Task Force commends H.E. Mr. Mitchell Fifield, Permanent Representative of Australia and H.E. Mr. Neville Gertze, Permanent Representative of Namibia, the co-facilitators of the High-Level Meeting on HIV and AIDS in 2021, on their zero draft 2021 Political Declaration on HIV and AIDS.

The Multi-Stakeholder Task Force particularly welcomes the fact that the zero draft not only recognizes explicitly who is most at risk of HIV, but also acknowledges why this is so. We equally salute the commitment to fully fund effective, human rights- and evidence-based responses, as demanded by the Civil Society Declaration for the 2021 High-Level Meeting on HIV/AIDS.

Communities and civil society, as actors in the global AIDS response, have for decades called for human rights- and evidence-based combination prevention, treatment and care. Such programme could have made the end of AIDS a reality by now. It is past time to take them to scale globally.

It is therefore encouraging that the zero draft follows the priorities of the Global AIDS Strategy and highlights the urgent need to address the structural barriers of discrimination, gender inequality, criminalization, underfunding and exclusion of people living with HIV and people most at risk of HIV, namely:

  • key populations, who are at greatly elevated risk of HIV infection in all regions and epidemic settings, i.e., sex workers, gay men and other men who have sex with men, transgender people, people who use drugs, and people in prisons and other closed settings;
  • other populations who may be at elevated risk of HIV, depending on national epidemiological and social contexts, including women and adolescent girls and their male partners, young people, persons with disabilities, ethnic and racial minorities, indigenous peoples, people living in poverty, migrants, refugees and people in humanitarian emergencies and conflict and post-conflict situations.

For the first time ever, measurable targets on societal enablers are addressed in a draft Political Declaration. We welcome the recognition of the importance of gender equality, including services for sexual and reproductive health and rights, and comprehensive sexuality education. We are pleased to see the acknowledgement of the need for legislation, policies and practices that prevent violence against key populations and people living with HIV and protect their rights to the highest available standard of health and education and an adequate standard of living. And we welcome the recognition that punitive and discriminatory laws, policies and practices that block effective responses to HIV must be removed, including laws that criminalize drug use and possession, sex work, sexual orientation or gender identity. For the next decade of AIDS response to make a tangible difference in people’s lives, it is vital that the 10-10-10 targets on societal enablers be confirmed in the final declaration, namely:

  • To reduce to no more than 10% the number of women, girls, people living with HIV and key populations who experience gender-based inequalities and gender-based violence by 2025;
  • To ensure that less than 10% of people living with HIV (including those with disabilities) and key populations experience stigma and discrimination by 2025;
  • To ensure that less than 10% of countries have punitive legal and policy environments that lead to the denial or limitation of access to services by 2025.

It is equally important that the 2021 Political Declaration retain its emphasis on community leadership, and the commitment for an increased proportion of HIV services to be delivered by organizations led by communities, key populations, women, and adolescents and youth, including the delivery by peer-led organizations of:

  • 30% of testing and treatment services, with a focus on HIV testing, linkage to treatment, adherence and retention support, and treatment literacy;
  • 80% of services for key population HIV prevention programmes, including for women within key populations;
  • 60% of programmes to support the achievement of societal enablers.

We welcome the recognition in the zero draft that community-led approaches have been essential in providing needed services during the COVID-19 pandemic, and that COVID-19 underlines the importance of increasing investments for HIV and other disease responses. We fervently hope that the commitment to close the HIV response resource gap will finally be achieved for the first time, and we urge a strong commitment to increase annual HIV investments in low- and middle-income countries to US$29 billion by 2025. We will especially seek to protect the commitment to expand the investment in societal enablers in low- and middle-income countries—including human-rights protections, reduction of stigma and discrimination, and law reform—to US$3.1 billion by 2025.

Finally, to transform political commitments into evidence- and human rights-based actions and investments, the 2021 Political Declaration must include stronger accountability commitments and mechanisms. The declaration must include a commitment to establish a mechanism to regularly track and review progress across all targets, as well as to ensure that US$29 billion is actually mobilized, allocated and invested annually in HIV/AIDS responses by 2025 globally, and to course-correct promptly if resource gaps emerge.

While the zero draft of the 2021 Political Declaration promises to break through the structural barriers that keep the potential to end AIDS by 2030 at bay, we will remain vigilant as Member States negotiate the final text in the run-up to the High-Level Meeting.

The stakes are high, and we—as communities and civil society—will align our efforts around what is essential for all of us to advance in the Political Declaration, to guide the world towards the goal of ending AIDS.

Join our #LoveAlliance campaign in May 2021

The Love Alliance is based on the premise that to end AIDS, the groups most affected by the epidemic need to be at the centre of the response. We build on existing evidence on the effectiveness of rights-based responses that focus on and meaningfully engage LGBTQI people, sex workers, people who use drugs, with specific attention for people living with HIV, women and young people within these communities.

As Love Alliance advances its agenda of love for all, it seeks to highlight the challenges that the key populations it supports are faced with and provide ways for these affected communities to reach out and get the support they need. In addition, the organisation is inviting all champions of human rights and advocates of harm reduction to join us as we highlight the issues faced by our growing global community. 

How to participate #LoveAlliance 

11 May General

Join us on this journey working towards health and human rights for all. Use this social media toolkit (download here) to help us amplify and broadcast our aims and messaging in the coming weeks. We created ready-made social posts and media assets for each key population, allowing you to join this movement easily. Feel free to share the messages across social media and elsewhere to raise awareness and change the world for the better, together. 

Use the below hashtags to amplify your voice and join the campaign on social media. 

General for all posts
#LoveAlliance

Specific for each key population
#WeLovePeopleLivingWithHIV
#WeLoveSexWorkers
#WeLoveRightsForUsers
#WeLoveLGBTQI

GNP+ 

Aidsfonds 

ISDAO – Initiative Sankofa d’Afrique de l’Ouest

Sisonke

GALZ

International Network of People who Use Drugs

UHAI EASHRI

Arab Foundation for Freedoms and Equality (AFE)

The Multi-Stakeholder Task Force for the 2021 High-Level Meeting on AIDS is thrilled to be launching the HLM 2021 Civil Society Declaration.

There is a crisis in the HIV response. Over the last five years, the world has failed to meet any of the targets for prevention, diagnosis and treatment set out in the 2016 Political Declaration on HIV/AIDS, with progress on HIV prevention lagging particularly far behind. The 2021 high-level meeting on HIV/AIDS – and the Political Declaration that results from it – is the last chance to create sustained momentum for the policies, programmes and funding that are needed to end HIV as a global health threat by 2030. 

Now more than ever, evidence-based responses and renewed political will are called for –especially in face of the additional burdens imposed by the Covid-19 pandemic. In order to focus efforts and resources where they are most needed, we call for a Political Declaration that: 

  • RECOGNIZES explicitly who is most at risk of HIV 
  • ACKNOWLEDGES why this is so 
  • COMMITS to fully fund and support effective responses 
  • HOLDS ACCOUNTABLE Member States for their actions

As a team we are proud of the hard work that we have done collectively to make this document a reality. We want to commend the Multi Stakeholder Task Force and its Advisory Group for their efforts to bring the voices of our diverse communities to the table despite the limited time. The Civil Society Declaration builds on the UNAIDS regional consultations, over 700 survey respondents and input from the Multi Stakeholder Hearing Civil Society Debrief.

We realize that it is impossible to craft a declaration that includes everything that everyone in our diverse HIV movement would wish for, but we hope you will find that many elements of the HLM 2021 Civil Society Declaration are aligned with your organizational priorities and that your community can take it and run with it.

Download declaration

We are asking organizations, networks and institutions to endorse the declaration. The more support the declaration receives the stronger it becomes as a tool to support advocacy with country delegations and missions leading up to the High-Level Meeting and the adoption of the Political Declaration on HIV/AIDS.

The Global Network of People Living with HIV (GNP+), Aidsfonds, and our partners invite you to take part in our three-part series to engage advocates and civil society members in preparation for and post the United Nations General Assembly 2021 High-Level Meeting on HIV/AIDS. The webinars will be hosted on ZOOM and streamed live on the GNP+ Facebook page in Arabic, English, Russian, Spanish, Portuguese and French.

The three-part series will systematically and continually engage advocates and civil society members following the process in a structured and predictable manner. The goal is to build civil society momentum and give people key moments to be engaged and updated by the HLM team. The first session will introduce advocates to the HLM and share the basics on how they can engage. The second session will support the preparation of advocates by sharing some of the key advocacy battlegrounds and how they can fine tune their advocacy strategies leading up the HLM. The third session will be a report back of the HLM and share the final outcomes of the process, including an analysis of gains and losses in language.

BELOW ARE THE DATES AND TIMES OF THE WEBINAR SERIES, REGISTER FOR A WEBINAR IN YOUR LANGUAGE OF CHOICE:

WEBINAR SERIES PART 3: HLM 2021 Outcomes: Gains, losses and how to prepare for country level advocacy

In the final of our HLM series, we will report back an overview of the HLM as well as an analysis of the political declaration and the potential gains and losses in language, which could potentially advance or set back the HIV response globally. The session will also share areas where advocates can focus on to enhance future national and global advocacy. 

Wednesday, 16 June 2021

Thursday, 17 June 2021

Webinar series 1

WEBINAR SERIES PART 2: HLM 2021 Advocacy: Preparing for action

During this webinar, advocates working directly on the outcome document will share areas to concentrate their advocacy leading up to and during the HLM. Participants will discuss terminology and key phases that opposition uses to mask discriminatory text, and effective arguments to counteract. 

Wednesday, 19 May 2021

Thursday, 20 May 2021

3

WEBINAR SERIES PART 1: HLM 2021 Basics: Engagement and advocacy opportunities

This webinar will answer questions that advocates may have about the UN High Level Meeting on HIV, key dates for advocacy, and some of the different ways that civil society can engage in the process. 

Wednesday, April 21st 2021

Thursday, April 22nd 2021

Webinar series 1

UNAIDS has established an Advisory Group to support the Multi-stakeholder Task Force that will be facilitating civil society involvement in the upcoming UN General Assembly High-Level Meeting on HIV/AIDS. The group consists of individuals working, among others, in the areas of paediatrics and HIV, UHC, human rights, gender equality, academia, youth leadership, and more.

The high-level meeting will take place on 8-11 June 2021. The meeting will lead to a clear and action-oriented political declaration will be agreed upon by member states to advance towards achieving the commitment of ending the AIDS epidemic by 2030. 

List of advisory group members:

Anton Basenko, The Alliance for Public Health, Ukraine – basenko@aph.org.ua

Rita Wahab, MENA-ROSA, Lebanon – menarosa696@gmail.com

Cedric Ninanhazwe, Y+, Netherlands – harunaaaronsunday@gmail.com 

Justin Koonin, UHC Civil Society Engagement Mechanism, Australia – president@acon.org.au

Javier Hourcade, Latin America HIV/AIDS Alliance, Argentina – javier.bellocq@gmail.com

Catherine Conner, Elizabeth Glaser Pediatric AIDS Foundation, US – cconnor@pedaids.org

Catherine Nyambura, ATHENA Network, Kenya – cathynyamb@gmail.com

Ferenc Bagyinszky, AIDS Action Europe, Germany – ferenc.bagyinszky@dah.aidshilfe.de

Fionnuala Murphy, Frontline AIDS, UK – fmurphy@frontlineaids.org

Trevor Straton, International Indigenous Working Groups on HIV/AIDS, Canada – trevors@caan.ca

REV’D FR Johannes Mokgethi-Heath (JP), UNAIDS Human Rights Reference Group/Act Church, Sweden – jp.mokgethi-heath@svenskakyrkan.se